NEUROMODULATION
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FRIENDS,
FAMILY, AND
COMMUNITY

GAINING SUPPORT AND STRENGTH
FROM THOSE CLOSEST TO YOU

BUILD A NETWORK OF CARE AROUND YOU AND YOUR LOVED ONE

As a caregiver for a loved one it’s easy to think that you should do everything yourself. When you’re wondering how to provide all the care and support your loved one needs, remember that there are often many people who are willing to assist you. Early in your journey, sit down with your loved one and make a list of people you might call on when you need a helping hand – starting with the people you trust and rely on most in your community.

BUILDING YOUR LOCAL SUPPORT TEAM

Friends, family, and your community are often the best place to start when you’re looking for support for your effort to provide care for your loved one. They can lend a hand with daily activities, help you manage the unexpected, and keep you connected to people you and your loved one care about.

Most importantly, family and friends in your community are close by when you or your loved one find yourself in need of help. Here’s where to start when you’re building a local support network.

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BEGIN WITH FRIENDS AND FAMILY

Family and friends are usually the most willing to help. Often, they want to help but are unsure what you need or what role they can play. You may wish to make a list of things you need help with, then contact each person and let them choose from the list. Here are a few suggestions to get you started:

  • Transportation to appointments
  • Running errands when you can’t leave home
  • Organizing or providing meals
  • Assistance with paperwork or paying bills
  • Taking on household chores, like yardwork
  • Sitting with your loved one when you need a break
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REACH OUT TO YOUR COMMUNITY

Get in touch with local organizations, charities, or volunteer groups who may know of people who can help support your caregiving efforts – or perhaps offer shared experiences or guidance. If you belong to a church or other faith-based group or are active in a religious community, talk to your fellow community members or officials. These connections are often a rich source of support.

If you need help finding resources in your community, consider reaching out to a support or advocacy group dedicated to chronic pain or movement disorders >

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TALK TO YOUR EMPLOYER

If you are in the workforce, talk to your employer about your situation. There may be benefits or services available. You may be able to take advantage of flextime or begin working from home. If your loved one’s condition is related to their employment, you may also be eligible for unemployment or disability benefits.

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REACHING OUT FOR MORE SUPPORT

You don’t have to take on all the responsibility and challenges of caregiving alone. Wherever you are on your caregiver journey, there are many who care about your welfare and that of your loved one. Don’t be afraid or embarrassed to ask for help when you need it. Often the support you need can come from unexpected places or sources you may not be aware of until you ask.

If you need more help than you can find in your community, there may be specialized groups and advocacy organizations that are focused on specific conditions or issues you and your loved one may face. Explore some organizations that focus on supporting caregivers of people with chronic pain and movement disorders >

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MORE CHRONIC PAIN RESOURCES

Find more helpful information about caring for someone with chronic pain, as well as inspiring stories from others who’ve shared your experience.

 

MORE MOVEMENT DISORDERS RESOURCES

Caring for someone with Parkinson’s disease or essential tremor? Find more helpful information, guidance, and inspiration for you and your loved one.

 

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