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SUPPORT AND
ADVOCACY
GROUPS

REACHING OUT FOR MORE RESOURCES
FOR YOU AND YOUR LOVED ONE

ORGANIZATIONS DEDICATED TO CHRONIC PAIN AND MOVEMENT DISORDERS

While your journey is unique, many others before you have traveled the same path. Still others are taking the same journey alongside you. Support and advocacy groups can provide a wealth of resources to inform, assist, and comfort you and your loved one along the way.

Whether you want to connect with others experiencing similar circumstances, get more information about your loved one’s condition, or need advice on a specific issue with which you are struggling, there are groups that can help. Keep reading for more information about groups that focus on your loved one’s specific condition, whether it’s chronic pain or a movement disorder like Parkinson’s disease or essential tremor.

CHRONIC PAIN

Living with chronic pain or being a caregiver for someone in chronic pain can take a toll on every part of your daily lives. But neither of you need to tackle those challenges alone: Here are some organizations that provide information, advocacy and support for those with chronic pain and their caregivers.

International Association for the Study of Pain

Working together for pain relief through the world, the IASP brings together scientists, clinicians, health-care providers, and policymakers to stimulate and support the study of pain and translate that knowledge into improved pain relief worldwide. Learn more at their website.

Amputee Coalition

The Amputee Coalition is the nation’s leading organization on limb loss, dedicated to enhancing the quality of life for amputees and their families. You can use their site to find a local support group for fellow amputees.

Chronic Pain Anonymous (CPA)

CPA is a group dedicated to helping people share their experience, strength, and hope to help solve common problems and help others recover from the disabling effects of chronic pain and chronic illness. Visit their site to search several different kinds of meetings.

The International Pain Foundation (iPain)

iPain is dedicated to promoting education, awareness, community and access to care for people with pain-related conditions. Check out their calendar of events for opportunities to connect with resources in your area.

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is an organization dedicated to providing support, education, and hope to all affected by the pain and disability of CRPS/RSD. See some of their inspiring stories on their stories of hope page.

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PARKINSON’S

Caring for someone with Parkinson’s disease is an ever-changing journey. Luckily, there is a wealth of organizations that can support you and your loved one along the way. Here are a few that can provide additional information and assistance to help you live a fuller life together.

European Parkinson’s Disease Association (EPDA)

We have been championing and working with the global Parkinson’s community for 25 years. As the leading voice for Parkinson’s in Europe, we provide information and resources to all Parkinson’s stakeholders, raise awareness of the disease’s complexities and impact, and advocate for concrete policy change that benefits the Parkinson’s community. Click here for tips on living well with Parkinson’s Disease.

Parkinson’s Austrarlia

Parkinson' Australia advocates for the Parkinson's community, promotes best practice models of service delivery, works to increase awareness of Parkinson's and provides information and education on Parkinson's symptoms, diagnosis, causes and treatments.

Find support here.

Davis Phinney Foundation for Parkinson’s

The Davis Phinney Foundation for Parkinson’s provides essential information, practical tools and inspiration to people living with Parkinson's. Check out their Every Victory Counts e-book, an ivaluable resource for helping you live well with Parkinson’s disease.

The Michael J. Fox Foundation

One of the world’s most recognizable organizations dedicated to fighting Parkinson’s disease, the Michael J Fox Foundation promotes a number of different ways to get involved with Parkinson’s-related activities in your area.

The Parkinson’s Foundation

The Parkinson’s Foundation is dedicated to helping make life better for people with Parkinson’s disease by improving care and advancing research. They also help connect people with community support for Parkinson’s disease.

Partners in Parkinson’s

Partners in Parkinson’s is a health initiative that aims to fill in knowledge gap and provide new educational tools and resources for the Parkinson’s community. They offer several different kinds of community support for people affected by Parkinson’s.

 

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ESSENTIAL TREMOR

Essential tremor affects millions of people, yet few know what it is prior to being diagnosed. If you are caring for someone with essential tremor, here are a few of the organizations that provide information, support, and advocacy – so you can make the most out of every day.

The HopeNET

The HopeNET is an organization specifically dedicated to helping connect people affected by essential tremor. Get in touch with one of their organizers to find a support group in your area.

The International Essential Tremor Foundation (IETF)

The IETF is a global group focused on providing hope to the essential tremor community worldwide through awareness, education, support, and research. They promote a range of opportunities to get involved in the essential tremor community through volunteering.

Tremor Action Network

The Tremor Action Network is dedicated to providing boutique services for people affected by essential tremor, including one-on-one support and guidance to patients, family members, and caregivers. Learn more about the support services they provide.

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MORE CHRONIC PAIN RESOURCES

Find more helpful information about caring for someone with chronic pain, as well as inspiring stories from others who’ve shared your experience.

 

MORE MOVEMENT DISORDERS RESOURCES

Caring for someone with Parkinson’s disease or essential tremor? Find more helpful information, guidance, and inspiration for you and your loved one.

 

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